Thursday, August 22, 2013

Is Stigma Overblown

Larry Drain publishes a blog named hopeworkscommunity . I am sharing one of his most recent posts.                  
This is an older post.  It is part a response to a post I read a few days ago from the leader of a mental health organization suggesting too much emphasis was placed stigma.
It is about Robert Emke.
Robert Enke died this past Tuesday. He was a soccer player in Germany. He stepped out in front of a train and committed suicide. 45,000 people came to his funeral. His story is reprinted below.
He brings a face to the idea of stigma. Reportedly he suffered from depression for at least 6 years. He did not want anyone to know. He was afraid of his child being taken from him for one thing if anyone found out. None of his teammates said they even knew.
I have known others who put tremendous energy into hiding their issues from people in their life. I have known many who were convinced that being found out would be the end of a job…. a relationship….or of something else important in their life. Stigma is not just what happens when people find out. It is the fear that drives you to make the most important thing in your life that no one finds out.
It sounds like Enke just ran out of steam. Untreated the depression was getting worse. Getting treatment meant exposing himself in a public manner. He couldnt live with either option. He chose to die.
Stigma is deadly. I wonder how many people refuse to get help because of what they think others will say about them. I wonder how many people put themselves in a pressure cooker of a situation trying to make others think everything is ok when it is not. I wonder why Robert Enke found himself in a situation where the best solution to him seemed death…. I really wonder.
Next time you hear the word stigma think of Robert Enke. And think about how many other Robert Enke's there are. And wonder why it is that so many people should be so scared or so ashamed of who they are and the issues they must deal with in their life.
Read the story below please. And say a prayer for the wife and child of a man who saw no way he could continue to live.
By ZACHARIAS ZACHARAKIS, Associated Press Writer Zacharias Zacharakis, Associated Press Writer – Sun Nov 15, 10:17 am ET HANNOVER, Germany – More than 45,000 fans gathered Sunday at the Hannover stadium for a memorial service for Germany goalkeeper Robert Enke, whose suicide has shaken the country.
"Robert Enke will never come back to this stadium, the place where he conquered our hearts," Hannover club president Martin Kind said at the beginning of the ceremony. "But it wasn't only his success that made Robert Enke so popular, it was the man, his personality."
The 32-year-old player, who played for Hannover 96 and had a good chance of being Germany's starting goalkeeper at next year's World Cup in South Africa, stepped in front of a train near his Hannover home on Tuesday evening. His widow, Teresa, appeared on national television a day later to say her husband had been suffering from depression for six years but did not want it known.
Enke's coffin was covered with white roses and was placed in the center of the field. German politicians and sports stars were also at the memorial, where many of the fans wore black and the club's green, white and black scarf.
Before the start of the ceremony, the fans stood and applauded when Teresa Enke walked to the coffin together with a friend. Several members of the German national team also approached the coffin to say goodbye to their teammate.
In a country riveted by soccer, Enke's death has prompted a debate about whether players receive sufficient psychological support.
Teresa Enke said her husband had kept his depression secret from the public because he had been afraid the couple's adopted 8-month-old daughter would be taken away from them if his illness was known. The couple's biological daughter, Lara, died of a heart ailment in 2006 when she was 2.
Enke's father told weekly magazine Spiegel on Sunday that his son had suffered for a long time.
"I think that his disease did not arise from something inside of him, but was triggered by his life's circumstances," said Dirk Enke, a psychotherapist, who said he tried to talk to his son several times but could not get him to talk about his depression.
In a farewell note, Enke apologized to his family and the staff treating him for deliberately misleading them into believing he was better, which was "necessary in order to carry out the suicide plans," said Valentin Markser, his doctor.
Enke's struggle with depression was not known to his teammates or coaches.
At the end of the ceremony, as Enke's coffin was carried out by his Hannover 96 teammates, many crying fans raised their club scarves.
"During the last days, there was only emptiness and sadness," said Thomas Brauns, 42. "It happened so suddenly. Last Sunday we still saw the game, applauded him … and two days later he throws himself in front of the train."
Enke was buried later in the day next to his daughter Lara in a private ceremony near Neustadt, outside Hannover.

Tuesday, August 13, 2013

DBSA EXHIBIT at TN Health Care Campaign's Conference

DBSA Tennessee setup an exhibit at the conference on the Affordable Care Act - August 3, 2013.

Assistant State Director Daisy Jabas, Annie Laurie, Nelly Piraja, State Director Steve Brannon

Saturday, August 10, 2013

Autumn Grieve shares a favorite poem

Psalm

There's a man surrounded by crickets in the grass

he's sitting on damp soil    

its breath better known

than his own heartbeat     

he's sitting with a congregation
of stones    

listening to the earth's sermons    

all the readings

from the scriptures of grass which were written in secret
composed of stalks and blades and glyphs of light
and the legs of crickets like bows against strings
playing the psalm of themselves

the man sits    

oblivious to the beauty of his own solitude

which is a single blade of grass in the evening breeze    

genuflecting.
 

by Julia McCarthy
from her collection 'Return to Erebus', 2010

*

Don Domanski is a Canadian poet who's work I hope will be discovered and cherished by the wider world - his themes are universal - and his poems are not only intensely beautiful, but an illumination in these uncertain times.

Tuesday, August 6, 2013

Lynn shares her feelings of gratitude

Lynn's words of gratitude for her new-found family

"the thoughtfulnesses, kindnesses, loving, caring devotion of this group is everlasting to my Spirit! These blessings were not only shared at the celebration of Life at our birthday party recently, but are always present in our large group, as well as in our smaller, intimate groups!....... LOVE ABOUNDS HERE, No matter what we are going through. Thank you, each, for your example of unconditional love we often don't get from "Outsiders", and for your continuing welcoming Spirit!..... Love and blessings of peace to each!

I'm glad it touched hearts..... Because it IS true!



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Sunday, July 7, 2013

Change is Needed to our Health Care System

Our broken healthcare system defeats even the most empowered patients

June 3, 2013 6:57 am by | 24 Comments MedCity News

Jess Jacobs and her paper medical records

Jess Jacobs and her paper medical records

Jess Jacobs and Donna Cryer are experts on the healthcare system — professionally and personally.

Jacobs has postural orthostatic tachycardia syndrome, and describes it best in her own words:

I have an idiopathic condition. It lies somewhere between the heart, autonomic nervous system, and mind. It's a veritable no-mans land of drugs and specialists where there's no cure and very little understanding.
I'm healthy enough to have a day job advising the people that chart the course of American health policy.

Cryer was diagnosed with IBD as a teen-ager and received a liver transplant in her twenties. She has a law degree and has worked with the FDA, PCORI, and the NIH. She runs her own consulting company to help pharmaceutical, biotech, and diagnostic firms work with patients and physicians.

Both women spoke Sunday at the XXinHealth event in Washington DC and both told absolutely awful stories of hospital stays and completely uncoordinated care.

Cryer said that once she was put in a makeshift room with no bathroom. It was divided by a curtain from a resident break room. As she lay in bed, she could hear them talking about patients.
"The patient side of me thought, 'I'm immuno-suppressed in three ways,' and the lawyer side of me thought, 'HIPAA violations,'" she said.
She also knew that her doctor was in the hospital but hadn't stopped by to see her.
"Part of me was hurt, but another part knew that she was doing scopes, which are reimbursed at a higher rate than complex consults," she said.

Jacobs also has the background to assess her personal hospital experience from a business perspective. In addition to a master's degree in health systems administration, Jacobs has a Six Sigma green belt. She rated a 12-hour wait in the ER for hospital bed at a 7% process cycle efficiency.
Jacobs has personal advocates that cover all areas of healthcare expertise: medical, health IT, public health and health systems. Even with a dream team to help her navigate the system, she has had sub-standard care, authorization nightmares and paperwork frustrations.

"I am a one-woman HIE, and I still have to carry my medical records with me in a big pink binder," she said.

Cryer and Jacobs were not the only healthcare pros at the event to make this observation about America's healthcare system: "If I can't do it, who can?"

Fortunately, Cryer and Jacobs are working inside and outside the system to make healthcare better for all of us. Jacobs is starting a new job as the director of innovation at Aetna. Cryer is working to get all her doctors to talk to one another and to get the administrator of the hospital to address her closet-room experience.

It was sobering to hear how difficult it is for even the most informed people to get the right care, but inspiring to know that nothing has shaken either woman's determination to change that.



Read more: http://medcitynews.com/2013/06/our-broken-healthcare-system-defeats-even-the-most-empowered-patients/#ixzz2YQfGdUCC

DBSA is awarded VA contract for second year

DBSA Awarded VA Contract to Train Veterans as Peer Specialists

Contact: Lisa Goodale (312) 988-1155 LGoodale@DBSAlliance.org

## FOR IMMEDIATE RELEASE ##

April 8, 2013, Chicago, IL—The United States Department of Veterans Affairs (VA) has awarded the Depression and Bipolar Support Alliance (DBSA) a second contract for training and certification of peer support staff employed by VA facilities across the country. A peer support specialist is an individual with the lived experience of a mental health condition who has been trained and certified to help peers gain hope and move forward in their own recovery.

Training prepares individual Veterans to assume roles in VA medical centers and other facilities as part of major expansion of peer support services within VA facilities. DBSA's initial training contract began in October 2012, and the new contract provides for DBSA to train an additional 160 Veterans during 2013. The first training course kicked off in February 2013.

"DBSA's long history of success in providing skills-based training for peer specialists makes it a strong partner for our efforts in this arena," says Dan O'Brien-Mazza, National Director of Peer Support Services for the VA Office of Mental Health Services.

The rapid increase in peer support positions results from an executive order, issued on August 31, 2012 by President Barack Obama, to improve access to mental health services for Veterans. The order directed the VA to expand its peer workforce by an additional 800 individuals.

These new positions will only go to Veterans who have recovered or are recovering from a mental health condition and who are trained and certified according to VA requirements.

DBSA President Allen Doederlein is honored to bring DBSA's nationally recognized training services to Veterans. "We know from 30 years of promoting and fostering peer support and peer leadership that sharing experience of a mental health condition has a unique power to affect understanding, acceptance, and a belief that recovery from debilitating mental health symptoms is possible," says Doederlein. "To bring this peer perspective into the lives of our nation's Veterans who need mental health care is an opportunity to celebrate their selfless dedication to our nation's safety and give back to those who give so much."

Under the contract, DBSA provides comprehensive instruction in 34 competency areas through a combination of distance learning and face-to-face training courses. Trainees must satisfactorily complete both a written exam and in-person skills observation. Trainers all have the lived experience of a mental health condition and a minimum of three years experience as peer specialists.

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The Depression and Bipolar Support Alliance (DBSA) is the leading patient-directed national organization focusing on depression and bipolar disorder.  


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